Thursday, August 27, 2009

Another child begins a journey

A member of a forum I frequently visit (daily) got the horrible news that her 3 year old daughter has Leukemia. She hasn't been told if it's ALL or AML or what subtype but obviously they are in shock and very scared. Please pray for them, the little girl's name is Gigi and her mom is Laura. They are a lovely family.
Also another board member of the same forum went into labor on the 24 and her baby is in critical condition. Please pray for them as well, baby's name is Joaquin and mom is Amy.

Saturday, August 22, 2009

Sad Day.

Elizabeth Dunford is being laid to rest today in her hometown. I found a beautiful video tribute to her online. I'm feeling a bit angry right now. Why do these precious kids have to get cancer?? I guess I'm also angry that Elizabeth was cancer free when she died. She really died from the complications of her transplant, which she never would have had to have had it not been for the cancer. I know we've made SOOO many strides and advancements in treating pediatric cancer, I see it everytime I go to work, but children are STILL DYING. There are still those few who react differently to the drug or have a particuarly aggessive type. Please pray everyday for more cures and better treatments to be made. I know researchers are working everyday at St. Jude to find cures, I see their labs and equipment and read their articles and it really is amazing how far we've come. But we need a 100% cure rate. Please pray.

Wednesday, August 19, 2009

A new angel in Heaven

I'm breaking my silent streak to pay tribute to a very special little girl named Elizabeth Grace Dunford. She was diagnosed with AML M7 on March 17 of 2008, and exactly 17 months later on August 17, she went home to be with Jesus. She was 2 years old. I never met Elizabeth, but she has touched my very soul in a way I thought not possible. I first noticed her name on the labels of chemo I made at St. Jude and I decided to see if she had a caringbridge page like many of the patients do. I probably shouldn't do this, because I start to feel a personal attachment to these kids when I read about their day to day struggles. Elizabeth went through SO MUCH, she did regular chemo, then had a haploidentcal bone marrow transplant in which her daddy was her donor. She was so doing SO WELL, until she developed hypereosinophilia and her skin began to sluff off, once that was controlled, her liver started acting up and it was eventually found out she had post transplant lymphoproliferative disease which is like another cancer, actually the most common type to have after having a transplant. Elizabeth went to the ICU after suffering some seizure type activity, and the angel baby never woke up, but she knew her family was there with her all the time. Elizabeth was extrememly loved not only by her family, but by everyone who came in contact with her at St. Jude. A lot of people are grieving for a loss greater then words can express. Elizabeth was like a beautiful bird that flapped into our drab little cage and made it wonderful, even just for a moment. It was wrong to try to cage her though, and now she's finally free, fly sweet Elizabeth, fly.